Need help managing your data?
Contact the library: ask@uml.libanswers.com
This guide was developed in Fall 2024 by Bari Pender (Ph.D., M.L.S. expected Spring 2025) and Veronica Chea (B.S. Public Health, expected Spring 2026), with inspiration and content from:
You are invited to re-use any content from this guide without needing to contact us, but please credit the authors and UMass Lowell Library when re-using.
Below is an example of repositories for different types of datasets aligned with the Biomedical and Bioengineering research disciplines. A single research project can generate several very different kinds of data that mogith require submission to different repositories.
This is only a sample- contact the UML Library if you need help or have questions.
Repository |
Scope and Data Types |
Data Access Policies* |
Submission Requirements* |
---|---|---|---|
NIH Clinical Data Repository |
Clinical trial data and observational health data |
Controlled access; IRB and data use agreements required |
Submit via NIH data sharing platform with data use agreement |
GenBank |
Genetic sequence data |
Open access, public domain |
Submission guidelines via NCBI |
dbGaP |
Genotypes and phenotypes |
Controlled access; requires institutional authorization |
Data use limitations; only for NIH-funded projects |
Cancer Imaging Archive |
Medical imaging data specific to cancer research |
Open access for general data; restricted for sensitive |
Consent required for any identifiable data |
SRA (Sequence Read Archive) |
Sequence data (DNA/RNA) |
Public access unless restricted by data sensitivity |
Submission through NCBI SRA submission portal |
NICHD DASH |
Health data across NICHD research |
Restricted and open access, varying by study |
Data sharing plan, project registration |
*Current as of Fall 2024